Good News / Bad News

 

So this was our scene on the way up and most of yesterday.  It didn't seem like he would stop vomiting the entire trip and was constantly in pain.  It was very reminiscent of the pain he was in during March/April of last year when he had pancreatitis.  But once we stopped his feeding (after 7 sticks to get his IV started!) and got some fluid going via IV, he seemed to be able to settle down.  

So today was the big scope.  I can't tell you how I hate these.  Maybe I'm still worried about what happened last time, but the scope is always pretty telling right up front (eye-ball test is never usually wrong).  So here is is as we prepared for the scope.

 

As you can see, he gets to watch while the do the scope.  It's pretty cool to watch and get to see the inside of yourself; especially if you're an 8 year old boy.  And once the scope started, we could tell the bowel was doing just fine.  Now we still have to wait for the labs to come back, but I would dare say his bowel looked as good/better than most of the times I've witnessed.  So now we're pushing to get his feeds back on target and tollerated.  Hopefully we're just battling a bug, and we're about done.  But as usual it takes a trip to Omaha, a week out of our schedule, and the futility of thinking we have things under control...

He seems to be doing well today, and I always thank God each day for each day.

Bad Labs - Back to Omaha

Just a quick note that we're back to Omaha.  He's been vomiting the last two days and his labs came back today in bad shape.  Going in-patient for now.  Hope to have better news tomorrow.

Stay tuned.

New Week - Same Story

Had two sets of labs done again this week, and he is still dry...  Very concerning at this point.  So we stepped up the volume on his feeds and are pushing fluids.  He seems to be very tired lately again, so we're trying to stay on top of the situation.  He's pretty active, so when he slows down we really notice.

We have a big meal planned at Church tomorrow, so I'm pretty sure he'll be excited to see all of his friends.  Keep praying, because I know we are.  His next set of labs is on Monday.

A little dry...

So today was the big Valentine's party and I was invited.  So I ate lunch with the boys here.  I can say for sure I do not envy the 2nd Grade teachers.  That's a lot of sugar (not for Ike) for 7/8 yr olds :)  Got a call today from the Team that Isaiah is running a bit dry.  Getting some extra fluids into him over the next few days since they don't have school.  Hopefully Friday's labs will be better.

Home again

Here's the little angel at his best:  asleep!  They let us come home and now we're doing wound care here.  It's not too bad, but his mobility is limited and the wound is right on his waistline.  Boys hate to be inactive and he hasn't gone back to school just yet.  I'll have a teaching day with the school nurse on Monday and hopefully he can make it through the whole day.  We've been back to Omaha twice now in January, but each time was for something different and neither were in reference to the transplanted organs.  We're hoping we can make it a whole month until his next check up...

Going to battle with 2 bugs

 

The 48hr culture panel came back and we found out we're fighting 2 bugs from the abcess.  There's a lot of "cillins" in there, so I won't bore you with the names.  But Isaiah is trying to make the most of it for now.  He's up and sitting in the chair and though he complains of pain every now and then, he is feeling better.  Not a lot new here, except he's starting a new antibiotic (one he's had before) and things should progress as planned.  This is about the "best" result we could have hoped for as there doesn't appear to be anything wrong with the transplanted organs.  So we'll get through this part and hopefully be home end of this week/next week.  It's never a one day visit to Omaha . . .