Watching the pot boil...

So the waiting begins. Isaiah will be listed tomorrow, June 3, on three separate lists. Liver, pancreas and small bowel. His kidney function is still good, but there is a possibility of having to add a kidney to the list. We met with the financial department as part of our transplant evaluation. With three organs being transplanted, it's a cool million dollars. $1,000,000.00-unbelievable. But my boy is priceless.

You know, it's really like waiting to have a baby. We will have bags packed and ready to go at any time. It could be two days, it could be a year. Who knows??? And then-living apart for at least six months begins (six months is the minimum-we are getting three organs so I doubt we will get easy time). I will come back here after the first few days and Aaron will stay in Omaha. We may even get to see each other once in awhile.

Isaiah and I finally had "the talk" about where his new parts are going to come from. He was getting upset about the delay in getting his transplant and wondered aloud what was taking so LOOOOONG. Of course he hadn't thought about where those organs come from. I explained that someone has to give those to him when they don't need them anymore. "We have to wait for someone to give you their parts and they have to be your same size", I said. "Will my friend ***** give me THEIR organs?", he asked. "No", I said. "How do you know??", he asked...I explained that his friend was still using their parts for now. I didn't think he needed to know that a child will die for him to get his new parts. Not yet, anyway. Maybe afterward. I heard him telling his sister later, "MOM SAID that I am going to have someone else's parts inside me after the transplant". As if he thought no one would believe him or we had played a cruel joke on him. Geez...

We did have a decent time in Omaha. It rained most of the time, but we tried so hard to enjoy ourselves anyway. If I can find the camera, I will add the pictures. After we returned home Friday, we went REALLY nuts and took the kids to Worlds of Fun. Isaiah was indebted with gratitude. I figured out how to keep his central line dry while we went on the Fury of the Nile. He thought I was some sort of miracle worker. The kid can't even take a bath or swim so it was a HUGE deal to go on the ride. Last year he wasn't quite tall enough and got dissed. We are just trying to enjoy as much as possible on each day. We know how hard things are going to be coming up. Brutal would be an understatement.

So, that was our big vacation for the summer. Five days of transplant diagnostics, Omaha Royals game, Omaha Zoo and WOF. I know, we live a life of excitement and intrigue, right???