Not so great today...

Back in Omaha with Boo for the weekend. Got here yesterday. No photo ops, as our boy said that we should not talk or have lights on because his head hurt and he was in pain. He didn't even want to kiss me goodnight :(

Rough morning today. The kid is on a narcotic patch, IV narcotics, Ativan (like Valium), and Benadryl. Could have knocked out a moose with all that but our boy was awake and hurting. Had to take a couple of the staples out of his stomach because it's oozing again. Now we have to do wet to dry dressings twice per day. If you don't know what that is, let me describe it for you. We take sterile gauze and wet it with sterile saline. Then we push it into the sugical incision as far as it will go (sound painful yet?). Then twelve hours later, we get to take the gauze that has now dried and stuck to the insides of the open incision and pull it all out. It is very painful, but it brings out all the yucky stuff with it. Then we start over with shoving more gauze in.

Isaiah also got to have one of his drain tubes changed. We went to a larger size because it was leaking stomach acid and the skin is dissolving around it. That was so fun, it took Aaron, the nurse, and me to hold him down. We did get a great little dressing to put around the tube to protect the skin better and there are lots of things we can do to heal the skin.

So after all that, he's asleep. Peacefully. He did have visitors today and I didn't take pictures so I'm kicking myself because they just left. Grandpa Ross and Grandma Fonda came. Through all the pain, his eyes lit up when they walked in his room. Unfortunately, they were there just in time for rounds and got to witness some of the fun. They took Boo down to the cafeteria for a LONG lunch so we could finish the gory stuff. I feel badly, sisters and grandparents should not have to witness that. Aaron and I are just used to it, sadly.

I'm hoping when he wakes up from his nap he feels better...watching him suffer helplessly is hard. I lay awake at night trying to think of things to ease his pain or distract him. But sometimes, there is just nothing to do for it except be supportive and be strong for him.