Coming Home!!!!

I cannot WAIT to get my hands on my boy! He will be home tomorrow and I don't even know if I will be able to sleep tonight. He is feeling so much better and I can't help but think it's because he knows that he is coming home. He ALWAYS does better when we get him home. He was feeling well enough today to eat a popsicle. I think that is about it for food. I believe The Team has decided he will be on clear liquids until his transplant.

He called me today to say that he is counting the hours until he gets to come home. Then the REAL work begins. Intense care all day, up most of the night. Mixing IV drugs and IV nutrition, measuring everything that leaves his body, IV pumps alarming, figuring out how to eat in front of him without making him feel left out, figuring out how to cover his drainage bags so that he doesn't feel embarrassed in public-the list goes on and on. The doctors appointments, the lab draws, taking vital signs, assessing him constantly-do I have enough listed or should I go on? Aaron and I will be handling it together on a 24hour basis-go Team Johnson!!!

I can't wait to look in his room at night and actually see him in his bed...