Take me out to the ball game...

Isaiah went back to school today for a half day. He made it through swimmingly and as a bonus he went to the Royals game.

He is one happy kid!! He is feeling better each day, unless it's the day we have to change his narcotic patch. Then he starts withdrawal symptoms and the pain comes back with a vengeance. Yesterday was the patch change day. Not such a good day for our boy...

Hoping he will be in school for full days before too long, he is still VERY tired, but getting stronger slowly. This may be as good as it gets for him but I'm hoping for more improvement before the liver complications begin. We know at some point he will go into liver failure, we just hope it's not too soon.

One day at a time is the best we can do...