Our Fundraisers

#1 You can join Isaiah's FIGHT on facebook and donate with a debit/credit card. CLICK HERE TO GO TO ISAIAH'S CAUSE on facebook.

#2 You can mail a check to their church-write ISAIAH somewhere on envelope or in the memo of your check:

Lifestream Christian Church 204 East Main Street Gardner, KS 66030 Phone: 913-856-8088

Monday, August 31, 2009

Albino ears...

Mr. Isaiah has a bleed somewhere in his belly. He is on the way to Omaha with Aaron now.

He started bleeding into his Gastric drain bag and we don't know why. But, we know Isaiah likes to bleed internally. He is pretty fragile in there. Apparently he has bled enough to make his ears white. It's weird. I've never seen that before. I was checking his gums, lips and nail beds. Then I happened to notice that his ears were very pale. He looks like an albino. Sooo, off to the hospital again.

He is going to Omaha this time instead of Kansas City because he will most likely need to be scoped so they can see what is going on. That has to be done in Omaha. He will definitely need blood. I'm very curious to find out what his hemoglobin and hematocrit are looking like.

Will update when we have a plan. Could be that they have to cauterize something bleeding inside and he gets to come home tomorrow after getting a blood transfusion. Could be a very easy fix. ;)

Sunday, August 23, 2009

Back again and ready for school...

We got the boy back out of the hospital on Friday afternoon. Originally, we all thought that he had the same bacteria in his central line again. Not so. I found out that he actually had MRSA sepsis (potentially fatal). Now, he is colonized with VRE (Vancomycin Resistant Enterococcus) and MRSA (Methycillin Resistant Staph Aureus). That really bothers me, even though his antibiotics are working and he is feeling better. It's just knowing that my child is colonized with two superbugs.

So, now he's missed the first week of school. He is excited to make it to school on Monday and meet his teacher and classmates. He makes friends easily so it shouldn't be a big deal.

We finally got moved!!! That's step two of the "getting a house that meets Isaiah's needs" plan. Step one was completed when we sold our house. If you need our address, shoot me an email please. We are now living in another town, but thankfully the kids are allowed to continue in our school district. We plan to move back to our town as soon as we save more money and find the right floor plan for Isaiah. Finding the right floor plan is going to take some time...

I have to say, working lots of hours, moving and having a child in the hospital all in the same week does not spell FUN. Glad this week is over...more glad that my boy is home. Thankful that I can do his IV antibiotics for him. Appreciative of our friends and family that want to help us.

Still waiting for THE CALL...

Thursday, August 13, 2009

Well that didn't last long...

The boy is back in Children's Mercy. He was admitted last night with a high fever, chills, headache, abdominal pain. He actually looked grey. What this probably means is that there are some bugs still hanging around on his central line from before. If that's the case, we can pull the line, go to surgery for a new one and be feeling better soon. He could potentially even make the first day of school, Monday. (Perhaps I'm being naive about that...)

This would be the second year he missed his all-important first day. Last year he was having ear tubes put in...

Poor little fella!! I'm glad God's got this-worrying just wears you down after awhile.