Our Fundraisers

#1 You can join Isaiah's FIGHT on facebook and donate with a debit/credit card. CLICK HERE TO GO TO ISAIAH'S CAUSE on facebook.

#2 You can mail a check to their church-write ISAIAH somewhere on envelope or in the memo of your check:

Lifestream Christian Church 204 East Main Street Gardner, KS 66030 Phone: 913-856-8088

Wednesday, July 29, 2009

The boy is home...

Finally got the negative culture we were waiting for and he's home...sigh of relief. Percy was so glad to see him he piddled on the floor.

Saturday, July 25, 2009

Better, but not all the way...

Isaiah's feeling better. Good enough to use rude behavior and get in trouble...but not good enough to come home yet. He is still culturing positive in one lumen of his central line, so he's not going anywhere yet.

Poor Percy the Puppy. He doesn't understand why Boo is gone and now Ike is gone. He is very lonely between Aaron and I both working and splitting time at the hospital with Ike. Ike is missing his dog and wants to come home. Boo called today and said she is missing her dog. More than she is missing Aaron and me, I'm sure. Tater is still gone for the summer and won't be back until August.

Can you believe this???? Isaiah had a Wii in his room at the hospital, from child life. It malfunctioned so child life took it back to the play room for repairs. She left the room, came back and someone had stolen it out of its rolling cabinet in the play room. I am absolutely floored. I can't believe that someone would steal from a children's hospital. There are no limits on stupidity and immorality, I guess. So sad...

Thursday, July 23, 2009

Sepsis times 2

So, Aaron and Isaiah didn't make it to Omaha. Isaiah was too sick to make the drive, so they stopped at Children's ER instead. Got admitted and up to the hosptial room by about 4am. What a night.

Isaiah has sepsis-bacterial infection in the blood. Both lumens of his central line were infected. I'm taking it really hard because I provide the care of his central line so I automatically think it's my fault. The coordinator in Omaha said I shouldn't take it so personal. He was having a lot of issues and a lot of people were accessing his central line lately-hard to know where he picked up his bacteria.

By the next morning, his temp. was over 105 degrees and they were putting ice packs on his body to try to cool him down. Tylenol, Ibuprofen and IV Vancomycin weren't doing the trick. They changed his IV antibiotics and then he started getting better.

I don't think he will have to get blood this time, so that's good. The problem is that they still aren't sure exactly what bacteria are growing in his blood stream. You know Isaiah, can't do anything by the book. He's got some weird stuff growing that shouldn't be there and is very difficult to identify. Originally I think we all assumed it was VRE (Vancomycin resistant enterococcus) sepsis, but not anymore, I guess. Aaron said they were in contact with the CDC (Centers for Disease Control)...

He's still at Children's and getting good care. He had a reaction to his IV antibiotics today-he threw up, his head started itching, his ears turned bright red...benadryl cleared it right up and then he got some desperately needed sleep. He is very bummed out that he isn't home with his puppy. All in all, I guess things are OK.

Still looking for a place to rent and running short on time. Scary, that. God will show us the way just like always, but I'm in a bit of a hurry here. It would be real cool if my timing and God's timing were the same for once. I'm not known for my patience...

Monday, July 20, 2009

Sick AGAIN...

So, Isaiah is now running a temp. of 103.5. I just packed a bag for him and he and Aaron are leaving for Omaha. :(

I will stay here to work and take care of Percy. Not likin' this, it's raining and Aaron and Isaiah won't get to Omaha until about 2:30am.

Sunday, July 19, 2009

Isaiah is a big brother!!!

Yes, it's true. We have adopted again...this time he's furry, cute and about ten weeks old. Boo named our new addition "Perseus"-a greek mythology figure. We just call him Percy. Percy is our clearance puppy-we love him dearly.

I have been trying for days to get a pic of Ike and Percy. A seven year old boy and a puppy together do not equal quiet moments. Ike has learned that it is time to grow up into a big brother and take on some responsibility. He gets to move up in the family hierarchy and let Percy get all the attention for now. Percy follows us everywhere we go and he is darling...just for the record, I wanted to call him "Joey". He looks like a baby kangaroo-all long, gangly legs and feet with giant satellite dish ears.

So, about Ike. We just got back again from Omaha late last night. He has issues with one of his drains and it's difficult to fix. He ended up needing to stay in the hospital and having it fixed under general anesthesia. But, we're OK now and so glad to be back home. The good thing was that we got to catch up with his nurses. We missed seeing his friends and their families, but we spent all of our time waiting for the procedure and sleeping or vomiting.

So glad to be home. Now we get to pack cause WE SOLD OUR HOUSE. Yes, we are moving. We desperately need a different floor plan for Isaiah's needs-after the next transplant that need will be even more intense. We are going to look for a rental house for a little while here in our town. Then we can save more money for moving and buying a different home. I hope it doesn't take long. Wish us luck and pray for God to show us the right home at the right time. We don't want to pursue anything that The Lord does not intend for us-we think we must be on the right track so far, because we sold our house after about a week on the market. It was shocking and scary all at the same time. We are SO taking a leap of faith here.

Everyone take care!!!