Our Fundraisers

#1 You can join Isaiah's FIGHT on facebook and donate with a debit/credit card. CLICK HERE TO GO TO ISAIAH'S CAUSE on facebook.

#2 You can mail a check to their church-write ISAIAH somewhere on envelope or in the memo of your check:

Lifestream Christian Church 204 East Main Street Gardner, KS 66030 Phone: 913-856-8088

Wednesday, November 25, 2009

We're going to be on TV for Thanksgiving!

We did an interview on Tuesday that is scheduled to be aired this Thanksgiving!  I also received word that the affiliate here is also owned by the same ABC station in Kansas City.  So you'll be able to see us in Omaha and KC!  Look for us on KETV 7 News here in Omaha, or KMBC 9 News in KC.  Not sure exactly what time, but they stated it should be either the 5, 6, or 10pm news.  Very exciting!

We've had a great weekend and some friends came up to see us.  We made our trip to the Zoo, a run through the Mall, and saw Planet 51.  Good times!

Wednesday, November 18, 2009

Trying to help others

So we visited a few friends that are still on the unit.  Emily was pretty happy to see Isaiah today.  We decided to help her paint her ceramic turkey for Thanksgiving.  Not sure I've seen many blue and yellow turkeys, but they had a great time.  Things are going well for now.  We're up to Day 11 on out-patient status and I can honestly say I'm glad we're out, but I hate his pumps!  Those things go off when ever/where ever (especially when you're sleeping) and take a bit of tinkering.  We have clinic again this week, but his labs have been good and I'm not hoping for any surprises.  The Boy has a birthday coming up and we're on a Bakugan kick.  I've tried it, and think of it like Poke'mon except with marbles.  Some of them are pretty cool, and he actually has to keep using his math to play the game - so I suppose it's a win-win :)

Friday, November 13, 2009

Results are in:

And the virus is causing the most problems right now.  We have received the biopsy results from both organs and everything is looking good.  The numbers are being attributed to the virus and we're just having to get through this stretch.  We now have a program in place to get him off the IV fluids and just on the enteral feeds only.  I think we can probably get this done within the next few weeks, but it will depend on his body and how it reacts to the changes.

Should be another good weekend!  He wants to see Astro Boy - so we'll check it out.

Monday, November 9, 2009

New Friends, New Problems

Here we find Ike being a ham for Little K.  As you can see, he is very happy to be out-patient and able to meet and play with new kids.  Little K is the daughter of a friend here in Omaha.  They played, got in trouble, and were generally able to keep each other entertained so the "adults" could have some play time :)

So, after such a great weekend we had the scope and labs this morning.  The scope looked fantastic, and everything was going great.  Then I received a phone call in regards to the labs.  Apparently, Isaiah's liver numbers have doubled (a bad thing) since he was released on Friday.  Not good news.  Also not good news is we get to have our first liver biopsy tomorrow.  Of course, Isaiah can't do things by the book.

It was supposed to be if the bowel was fine, then the liver and pancreas would be doing well.  So, we've blown that out of the water and now he will be put under tomorrow at 1300hrs for the first of what I will assume will be many over the next few months.  He got to the Zoo Saturday, playtime Sunday, and to the Park today.  We'll see how things go for the next few days.

Sunday, November 8, 2009

Big Weekend

So, little Ike had 2 requests for his first weekend.  1)  Get to the Zoo and 2) Go to Taco Bell.  Ah such simple things.  So we spent most of the day Saturday running around and watching the Gorilla's.  We sat down (as Ike needs to build his stamina a bit) and we see the mighty Gorilla picking his nose.  So while all of the other kids are fighting to get on to these statues, our boy is doing the following:

These kids - so impressionable.  He also got his Fiesta Potatoes tonight from Taco Bell.  He can't eat all the cheese, but he loves the potatoes and it's an easy request to fill.  We're in for an early morning tomorrow as we have to be down to Endoscopy by 0600.  Yuck.

Friday, November 6, 2009

And we're FREE! Well, sorta.

Here we see little Isaiah tired from the days events.  And notice we're not in a Hospital Room!  We're outpatient!  Almost a full month ahead of schedule.  Now what this means is I'm providing total care for our little cub.  Since we're out early, this means we have a rigorous schedule.  He has to receive all medications at 0900/2100 hrs, he currently still has an open incision site being changed 3x day, he is on TPN (IV nutrition), Enteral Feeds (nose tube), and has now been diagnosed with Adno- & Norwalk virus.  And I was told today he may be in the beginning stages of rejection - though virus can mimic the symptoms so we won't know until Monday what's really happening since -> He's getting another SCOPE!  Yay!

It was a lot of information to digest today and we had to move out of his room into ours.  Not a whole lot of space available at the moment.  Keep praying.  We hope to go to the Zoo tomorrow.

Two Q-Balls

So we got a haircut.  What can I say?  He's very convincing.  Things have been going well, and I think we may move this weekend into the Lied Room.  It's always subject to change, but if it occur's it would be a great step towards getting home ahead of schedule.  Stay tuned as we may have better news tomorrow.

Wednesday, November 4, 2009

Surprise Visitor and another infection

Well, we had a surprise visit from one of Isaiah's friends from the last round of transplants.  It was funny, because Isaiah had just written a letter to him as part of his school work and he showed up the same day!  Funny how God works sometimes.  We are also still battling an infection in his stomach suture.  Probably take  a few more days of dressing changes, but looks like we "might" be outpatient early next week.  I've said it before, and it seems to jinx the process but things are looking better at the moment.