Slow updates are a good thing

Hello, everyone!  I just wanted to put a quick update.  Sometimes when you don't hear anything, it's a good thing.  And since his last bout in October, things have been going well.  We're currently working on getting the tube taken out permanently - of course he has to help by eating/drinking.  But as he is getting older, I think he is starting to become more self aware of his limitations.  The tube is just another reminder of being dependant on others, and if it's one thing we know about Isaiah is he loves his independence!  So we have another follow-up appt next week and hopefully his drinking enough nutrin jr and water to stay hydrated.  Thank you all for the continued support!

Back to school

well he made it a half a day at school.  lots to catch up on, but he was a little tired and needed a break.  full day tomorrow and labs again on wednesday.

And we're home again!

They decided just to watch him over the 48hour period and have let us come home.  Thank you, Lord!  The boy is looking pretty good and is getting back to normal.  We have a few things to clear up before he returns to school on Monday, but overall nothing we haven't dealt with in the past.  Thank you all again for the support.  He is a resilient boy!

To scope or not to scope...

well, they have decided not to scope ike today.  we were ready for it, but since he seems to be recovering so well they dont want to be as invasive as we thought.  so now he is under two day observation and making sure his gut is working well.  they will just watch his blood work and make a determination on thursday.  stay tuned...  and sorry those who are commenting.  the posts are being received but we are not able to get them posted.

Back in Omaha, but maybe not for long.

doctors have looked the boy over and he is looking pretty good.  they will have a scope and biopsy tomorrow and we can only hope and pray the organs have survived the infection.  it is scheduled for tomorrow afternoon.  if things go well, we may leave this week.  if not, who knows.  but we are in familiar company and our son is acting normal again.

back to omaha

well we made it a while, but its back to omaha for a few days. it looks like we may be changing immunosuppresive drugs and biopsy. we will have to see how thi ngs go...

boy is doing well

wow, what a difference twenty four hours makes. he is awake and we should be moving up to the sixth floor tonight... god is good all the time. thank you all for prayers and support.