Community Blood Drive and Santa!

Hello, everyone!  Here we see our boy visiting Bass Pro and telling Santa how I need to receive coal for Christmas.  Gotta love him.  We've had a great time this last week.

For those at home, we've added a new LINK!  Please click and sign up for a time to donate blood!  It's very important and only takes a few minutes.  And it goes to help everyone.  Isaiah has received quite a few transfusions.  I'm going to leave the link up so it's easy for everyone to sign up!  You can find more information about this great organization here.

Live Link!

WOW!  What a wonderful weekend treat!  We were able to be shown not only on KC/Omaha, but CNN picked up the story and it's available for viewing here:

Isaiah Goes Live!

This was a wonderful surprise.  I only wish his blog was on there :)

Check our boy out!  Don't watch me.  The camera has added a few pounds, not Thanksgiving!

I was also able to find out which stations showed the story on which days (so far) with some help from a really nice lady here at the hospital.

Nov. 26

KETV Omaha 5pm

KMBC (ABC) Kansas City 6pm

WDAF (Fox) Kansas City 9pm & 10pm

Nov. 27

KETV Omaha 6:30am

WFXG (Fox) Augusta, GA 9pm

Nov. 28

KMBC (ABC) Kansas City 7am & 8am

WDAF (Fox) Kansas City 7am & 8am

WMDT Salisbury, MD 10pm

WIVB Buffalo, NY 10pm

So if you live in any of these area's or know someone that does, point them in this direction to get more information!

We're going to be on TV for Thanksgiving!

We did an interview on Tuesday that is scheduled to be aired this Thanksgiving!  I also received word that the affiliate here is also owned by the same ABC station in Kansas City.  So you'll be able to see us in Omaha and KC!  Look for us on KETV 7 News here in Omaha, or KMBC 9 News in KC.  Not sure exactly what time, but they stated it should be either the 5, 6, or 10pm news.  Very exciting!

We've had a great weekend and some friends came up to see us.  We made our trip to the Zoo, a run through the Mall, and saw Planet 51.  Good times!

Trying to help others

So we visited a few friends that are still on the unit.  Emily was pretty happy to see Isaiah today.  We decided to help her paint her ceramic turkey for Thanksgiving.  Not sure I've seen many blue and yellow turkeys, but they had a great time.  Things are going well for now.  We're up to Day 11 on out-patient status and I can honestly say I'm glad we're out, but I hate his pumps!  Those things go off when ever/where ever (especially when you're sleeping) and take a bit of tinkering.  We have clinic again this week, but his labs have been good and I'm not hoping for any surprises.  The Boy has a birthday coming up and we're on a Bakugan kick.  I've tried it, and think of it like Poke'mon except with marbles.  Some of them are pretty cool, and he actually has to keep using his math to play the game - so I suppose it's a win-win :)

Results are in:

And the virus is causing the most problems right now.  We have received the biopsy results from both organs and everything is looking good.  The numbers are being attributed to the virus and we're just having to get through this stretch.  We now have a program in place to get him off the IV fluids and just on the enteral feeds only.  I think we can probably get this done within the next few weeks, but it will depend on his body and how it reacts to the changes.

Should be another good weekend!  He wants to see Astro Boy - so we'll check it out.

New Friends, New Problems

Here we find Ike being a ham for Little K.  As you can see, he is very happy to be out-patient and able to meet and play with new kids.  Little K is the daughter of a friend here in Omaha.  They played, got in trouble, and were generally able to keep each other entertained so the "adults" could have some play time :)

So, after such a great weekend we had the scope and labs this morning.  The scope looked fantastic, and everything was going great.  Then I received a phone call in regards to the labs.  Apparently, Isaiah's liver numbers have doubled (a bad thing) since he was released on Friday.  Not good news.  Also not good news is we get to have our first liver biopsy tomorrow.  Of course, Isaiah can't do things by the book.

It was supposed to be if the bowel was fine, then the liver and pancreas would be doing well.  So, we've blown that out of the water and now he will be put under tomorrow at 1300hrs for the first of what I will assume will be many over the next few months.  He got to the Zoo Saturday, playtime Sunday, and to the Park today.  We'll see how things go for the next few days.

Big Weekend

So, little Ike had 2 requests for his first weekend.  1)  Get to the Zoo and 2) Go to Taco Bell.  Ah such simple things.  So we spent most of the day Saturday running around and watching the Gorilla's.  We sat down (as Ike needs to build his stamina a bit) and we see the mighty Gorilla picking his nose.  So while all of the other kids are fighting to get on to these statues, our boy is doing the following:

These kids - so impressionable.  He also got his Fiesta Potatoes tonight from Taco Bell.  He can't eat all the cheese, but he loves the potatoes and it's an easy request to fill.  We're in for an early morning tomorrow as we have to be down to Endoscopy by 0600.  Yuck.