Happy Halloween!

The pictures from today and yesterday's adventure are up and in the slide show to the right!  Our boy did quite well.

Snake Eyes

So here we find the boy in his "costume" for Halloween.  Child Life is setting up some "trick or treats" on each of the floors for the next few days.  He is still on isolation for tomorrow, but for all those kids stuck like us they are having a "reverse" trick or treat.  Basically, the nurses are coming around to the rooms and giving items to the kids.  Then on Friday we'll have a parade of costumes and get to go to the different nurses stations.  No concentrated sugar for the boy, so he'll get the nick-nacks and I'll be gaining a few pounds.  Good times.

All the Support and Influenza A...

This was sent to us from a class in California!  This is just one example of some of the support we have received over the last few months.  He really enjoys getting the cards and pictures because he can actually see those that are writing the letters.

This week has been a mix of news.  We've found out he tested positive for Influenza A - which is the family of flu that H1N1 belongs to.  He doesn't have it, that we know of - but just being given the diagnosis has brought it's own challenges for him and me.  We're both basically on quarantine until this Friday!  So I've limited myself to the Lied Room and his room, and I now am wearing a mask through the wing to make sure nothing gets out of hand.

As always, thanks for everything!  We'll continue to update as things come along.  Isaiah is very excited to get off isolation just in time for Halloween!

May I present the Rooster . . .

So here we see the boy and his new hairstyle.  And we also see a few visitors that have come up to fawn over the little one.  It was a very good evening getting some old stories out and everyone laughing.  The visitors are coming back again tomorrow, so hopefully we'll get a few more good pictures and get the boy outside for the first time in about 2 months.  Little things, a little at a time.

It looks good, but still not acting right.

So the bowel actually looks OK.  He's still dumping though, and that means more time to get everything settled and him back on track.  Like we've said - it's always something, but at least this hasn't damaged anything they can tell so far.  More pictures coming soon!

Quick Update - Virus is back

Well our few days without issues are over.  Isaiah is up to be scoped today as we've found out he has an Adenovirus affecting his outputs.  This is bad as this particular virus can cause inflammation of the new bowel or help cause rejection.  They've been replacing fluids, which is just about all they can do for now.  This is just a testament to how fast things can change, as he had a scope on Friday evening and everything looked good.  Hopefully we'll have results today after 3pm.

So, we're camping today!  We had our daily ration of bacon and we set-up our "tent" and Ike is camping tonight.  He's got the TV and remote and 3 hours of cartoon network coming up.  He is doing very well.