Our Fundraisers

#1 You can join Isaiah's FIGHT on facebook and donate with a debit/credit card. CLICK HERE TO GO TO ISAIAH'S CAUSE on facebook.

#2 You can mail a check to their church-write ISAIAH somewhere on envelope or in the memo of your check:

Lifestream Christian Church 204 East Main Street Gardner, KS 66030 Phone: 913-856-8088

Friday, April 3, 2009

Tired, but so happy...

So, Aaron and Isaiah got home yesterday. We got to unpack the boxes of medical "stuff" and try to find a place to put it all. Then, we commenced to taking care of our boy.

He was more fatigued than I would have expected and did not leave the couch until it was time for bed. Then, he went to sleep immediately. I only had to get up in the night five or six times to empty drain bags, take him to the bathroom, re-apply the dressing to one of his drain sites and just kiss him and tell him how happy I was that he finally made it back home. He just kept snuggling back under his blankets and sighing a very contented sigh.

Today wasn't the greatest day for him. Lots of pain, some vomiting, lots of fatigue-temp 99.7. Tough, but better than it has been. He really can't walk far at all. He can't get up or down the steps without assistance and he has to walk about 1mph. Poor fella. It'll get better. We had hoped to take him to his sister's school play tonight, but he isn't up to going. Can't wait to take him to church Sunday!!! Aaron and I told him that we would carry him the whole way if we had to.

His sisters must have missed him more than they admit-they have fussed over him since they got home from school. ;)


  1. Yeah! I will keep praying that you all get your much needed rest! Thank you for taking time to update--I know you are all exhausted! God bless you all!

  2. I am so glad your little boy is home. I have been following his story for a little while now. You are in my prayers. Praying for endurance and healing,I know how hard it is to get up in the middle of the night with a sick child.
    Isaiah is almost the same age as my oldest son, so it hits close to home.

    Isaiah, feel better soon buddy!

    ~The Sheeley family

  3. i'm so glad they are home, i had a big grin on my face and told the kids, its so funny when i log into the blog now and the kids ask me 'how's Isaiaih?'

    lots of love xxx

  4. So glad to hear he's home! Still praying for all of you! :o)

  5. So glad to hear that Isaiah is at home!

  6. Yay Isaiah is home! Praise the Lord. You guys are in my prayers still. The Lord will give you strength to care for your boy and may the Lord give you rest too! Love your little boy and your love for the family. May the Lord's blessings and grace be upon your family!