Our Fundraisers

#1 You can join Isaiah's FIGHT on facebook and donate with a debit/credit card. CLICK HERE TO GO TO ISAIAH'S CAUSE on facebook.

#2 You can mail a check to their church-write ISAIAH somewhere on envelope or in the memo of your check:

Lifestream Christian Church 204 East Main Street Gardner, KS 66030 Phone: 913-856-8088

Friday, September 25, 2009

1 step forward, 2 steps back

So we started off with a lot of discoloration of the skin. This is just under his ostomy bag. We have been battling a loss of platelets and no kidney function now for 3 days. Last night was a long one as I was up all night waiting for labs and hoping the IVIG would help coat the replacement platelets but so far has been a lost cause. So with everything else we've been dealing with, his body is fighting itself and up until late night his breathing was labored at best. So now we're intubated:

Jennifer is here this weekend and brought up a puppy pal since Percy isn't allowed to come to Omaha. This will have to do for now as we wait for his body to reset, let the Lord heal, and continue to pray for a good recovery. I was up until 0830 this morning as there was a lot of excitement with putting the tube in, getting his labs done, and finding the right amount of pain control. I know the pictures only show part of the story, but he has really been struggling and we weren't sure he was going to make it last night. It's always easier to look at the situation after the fact, but I know there were many people praying for our little boy last night and I can only say the Lord was listening.


  1. I just wanted to let you know that I am here with you in heart and prayer and that if you need anything--please feel free to ask--and I will do my best to help you and your family out. Sending all my love! JODI

  2. Dearest Family of Isaiah,
    My daughter Daisy had a Small Bowel, Liver, Pancreas Transplant at UNMC July 20, 2006. We have seen precious Isaiah in the hospital. In fact, a day or so before you got the call for Transplant 2, I saw him whooping it up with a tech. He has such a strong life force. Following is a Hebrew poem given to us by a longtime friend which we recite every night before prayers. We pray you find comfort in it:
    El Na Refana La--Please GOD heal her
    El Na Refana Li--Please GOD heal me
    El Na Refana Lo--Please GOD heal him

    We are loved by an un-ending love
    We are embraced by arms that find us, even when we are hidden from ourselves
    We are touched by fingers that soothe us, even when we're too proud for soothing
    We are counseled by voices that guide us, even when we're too embittered to hear.

    We are loved by an un-ending love
    We are supported by hands that uplift us, even in the midst of a fall
    We are urged on by eyes that meet us, even when we are too weak for meeting

    We are loved by an un-ending love
    And Counseled

    Ours are the Arms
    The Fingers
    The Voices
    Ours are the Hands
    The Eyes
    The Smiles

    We are loved by an unending love

  3. We love you all! Keep fighting big guy!

  4. Just wanted to let you know that you are in our every thought and prayer Johnson Family! We love you guys! Isaiah keep fighting buddy, we can't wait to see your smile around church!

    Caitlin and Brandon Walter

  5. We love you, little man. Keep fighting!!

  6. Keep fighting Isaiah! Still praying for your family.

  7. Still praying, little guy! We love you!