Our Fundraisers

#1 You can join Isaiah's FIGHT on facebook and donate with a debit/credit card. CLICK HERE TO GO TO ISAIAH'S CAUSE on facebook.

#2 You can mail a check to their church-write ISAIAH somewhere on envelope or in the memo of your check:

Lifestream Christian Church 204 East Main Street Gardner, KS 66030 Phone: 913-856-8088

Thursday, September 24, 2009

We have an ADDRESS!

I've receive a lot of requests for an address to send cards et al to Omaha. Well here it is:

Isaiah (or Aaron) Johnson
PO Box 6550
Omaha, NE 68106

We've had issues in the past with the hospital postal service "misplacing" items for extended periods of time. So if you have anything you'd like to send, please do so. Isaiah loves to get pictures and mail. It's lonely up here :-)

Anyway - labs are doing some funky things. We're currently experience kidney issues related to the prograf levels in his blood. Basically, his body has been under a lot of stress with the transplant and we're trying to get all the levels back to as close to normal as possible. And when one thing is out of whack, then it affects something else. So currently we've gotten his platelet count high enough that he will actually start coagulating again, but his FK levels are so high they're interfering with his kidneys.

He's also a bit yellow, which indicates there may also be a few issues with the new liver. . . .

He's trying to be a trooper but having to wear a mask, having 4 different lines coming out of the body, and having to be on monitor leads is having the desired 7 year old boy effect. So we'll keep praying and see what the team brings us next for options. Currently we're trying to tackle one issue at a time.


  1. God Bless you sweetheart!! You are a miracle sweetie and You are in my thoughts and prayers and I only hope that you get every thing in life that you deserve!! Lots and Lots of love sent to you sweetie from Texas!!! Sincerely,
    ~Sasha Reif~
    Tons of Hugs sweet little guy!!!

  2. Praying for you all!!! Isaiah, keep up the fight!!! We love you!!!
    sending our love....
    Carla and Todd...