Sunday, March 15, 2009
Home again, home again...
Well, I at least got a dose of my boy this weekend. Boo and I went up to visit-can't let "the boys" have too much fun! Boo and Isaiah played some cards after a VERY competitive game of chess. They are both beginners so it was funny to listen-I don't know how to play so Aaron had to referee. I guess you can't move any old piece sideways in chess??
Friday Isaiah had more diagnostics to follow up from having the scope on Thursday. He is blocked three different ways. They used contrast and it showed that the drainage tube exiting the duodenum was obstructed, the intestine from the stomach was obstructed and nothing came through from the bottom either. Obstructed three different ways in such a small area. Who'd have thought???
OK, now the hard part. Isaiah is going to have surgery tomorrow, just found out that he is scheduled for noon. He is going to have the single(!!) lumen central line removed and a double lumen placed instead, but of course, that is just the opening act.
His abdomen is going to be opened again. This time, that little piece of transplant that was left is going to be removed. He had another small piece of his own intestine attached to the transplant from the liver. That is now going to be in a loop, attached to the stomach with a drain stuck in somewhere. Nothing attached to the end, if you know what I mean. Hard to picture, I know. I have a lovely drawing from the surgical team that I will scan tomorrow and put in the blog. It helped me a lot because I couldn't imagine what else they could do. There isn't a whole lot to work with.
He'll be back in Pediatric ICU after surgery until he is stabilized and then we start over with the post-op recovery. Maybe this time it will be blessedly uneventful. I supposed it doesn't matter too much, since I do know that he will be OK in the end no matter what, but I would like to spare him the pain and discomfort.
Also, he will not be able to eat food after this surgery until after the transplant. Since he has no way to evacuate food eaten, it would clog the drain tube that he will have. That is a huge deal to us since we worked so hard to teach him how to eat when he was two years old. Isaiah is not going to be happy to say the least.
Will update tomorrow when I know something.